News, info and tips for living with multiple sclerosis
It’s one of those questions that all of us with MS get. And it’s one that most of us with MS don’t like to answer. How do you respond when someone asks you “are you doing OK?” #1 You can say “Yes, I’m fine, thanks,” even if you’re dragging and defiantly not OK, and be done with it. #2 You can be honest about how you’re feeling and open up…Continue Reading
You probably talk about multiple sclerosis (MS) symptoms, drugs and therapies when you meet with your neurologist, but I’ll bet that most people don’t talk very much about working. Being able to work, and continuing to hold down a job, is important. I see concerns about this all the time on the online forums where we MS patients hang out. Work should be a part of that medical discussion. In…Continue Reading
(This post first appeared as my column on www.multiplesclerosisnewstoday.com) One of the most troubling symptoms of multiple sclerosis, especially for those of us who are still working, is “brain fog”…not being able to concentrate… not feeling “sharp” when working on a task or solving problems. So it was interesting to read about a new study that reports that patients with MS had better problem-solving ability and response time after training with…Continue Reading
[This first appeared as my column in www.multiplesclerosisnewstoday.com] Browsing through some multiple sclerosis Facebook groups the other day I was reminded of the line from the 1967 movie Cool Hand Luke: “What we have here is a failure to communicate.” These posts jumped out at me: So when my neuro says he wants me to start physical therapy, does that mean I’m going to hear a call from them or…Continue Reading
[This post first appeared as my column in www.multiplesclerosisnewstoday.com] You may not have heard this song, but I bet its lyrics will strike a chord. I cannot feel my body. I cannot feel my face. My legs are pins and needles and my mind is a disgrace. I see in double vision, so there’s more of you to admire. Got a freaky disposition and my soul is on fire. The…Continue Reading
[This item first appeared as my column on www.multiplesclerosisnewstoday.com] Uh oh! My cat, T.J., is under my feet trying to nibble my ankles as I stumble toward the bathroom in the middle of the night. I know what’s about to happen. As I try not to step on T.J.’S tail, it’s already started. I’m going down. It all happens in about three seconds, and how I handle those three seconds…Continue Reading
Photo by Mark Kennedy, Chattanooga Times Free Press
[This post first appeared as my column on www.multiplesclerorisnewstoday.com] I’m 68 years old. I’ve had multiple sclerosis since I was 32. I’m not sure where I expected this disease would take me when I was diagnosed 36 years ago but I hoped that it wouldn’t steal too much of my life from me. I certainly never thought of the possibility that I might live to a really old age with…Continue Reading
(This first appeared as my column in www.multiplesclerosisnewstoday.com) “Round round get around. I get around.” I was humming that classic 1960s Beach Boys tune this morning (yes, I’m that old) as I thought about a feature story that I saw on one of the TV networks the other night. The story profiled Cory Lee. Cory has spinal muscular atrophy, which means he’s one of us gimps who get around on…Continue Reading
[This post first appeared as one of my columns on www.multiplesclerosisnewstoday.com] You don’t see people with disabilities very often in TV ads. And when you do, the person with the handicap is usually playing a secondary role, or the ad uses the disabled person for an emotional appeal. It’s not real-life. It’s not us. So, a tip of my hat to the candy company Mars Chocolate UK for producing some…Continue Reading
Cheryl Hile runs a marathon in South Africa. Pic courtesy C. Hile
(This is an update of my column posted last week on www.multiplesclerosisnewstoday.com) Tripping, falling and bloody knees. Been there. Done that. (Who with MS hasn’t)? But this wasn’t me. This was Cheryl Hile and it was happening to her as she was running a half marathon in Carlsbad, California. Cheryl had been running marathons for half a dozen years when, in 2006, she was diagnosed with Multiple Sclerosis. She says…Continue Reading