News, info and tips for living with multiple sclerosis

I Give MS Advice. My Wife Says I Should Follow it.

taking my own advice

I have to be honest: I haven’t always been honest. I don’t always practice what I preach. My wife called me out on that as we watched an interview I did recently about multiple sclerosis on Montel Williams’ podcast. “You should follow your own MS advice,” she told me. She’s right. Keepin’ it positive I’ve always been a “let’s all look on the bright side” kind of guy, at least…Continue Reading

Really tired? Most People With MS Are

really tired

Are you tired? Really tired? Me, too. Most of us with multiple sclerosis are. How many really tired people is most? A small new study of 44 people with one of the progressive forms of MS found the answer is a little over 86%. (I’m surprised the number isn’t higher.) Those people described their fatigue as “tired,” “exhausted,” “wiped out” and having “little or no energy.” Half of patients reported…Continue Reading

Are You Ready for Bed at Noon?

Fatigue

(This post first appeared as my column on www.multiplesclerosisnewstoday.com) I thought that I’d finish writing this last night, but I was too tired. Same thing the night before…and I’m sure this sounds familiar to a lot of you. The National Multiple Sclerosis Society estimates that about 80 percent of the people who have MS have fatigue as one of their symptoms. (Only 80 percent?  The other 20 percent must be…Continue Reading

Can you measure how tired I am?

[This post first appeared last month in my column on www.multiplesclerosisnewstoday.com] Feeling tired? No surprise there. Fatigue is as much a part of living with Multiple Sclerosis as sand is a part of the beach where I live. It’s interesting, then, that neurologists seem to have no good system for measuring levels of MS fatigue or any treatments that are really effective over the long term. Physiologists at Colorado State University…Continue Reading