News, info and tips for living with multiple sclerosis

Is another COVID-19 booster right for me?

Third covid vaccine

If you have multiple sclerosis may want to roll up your sleeves fr another COVID-19 booster. I’m thinking about whether to join you. Last month, an advisory committee of the U.S. Centers for Disease Control and Prevention (CDC) supported a recommendation that people 65 and older and those with compromised immune systems get another booster, if at least four months have passed since their last one for those 65 and…Continue Reading

I’ve Had My COVID-19 Booster

covid-19 booster

I’m hurtin’ a little today. I have mild muscle aches, a bit more fatigue than usual, and dragging legs. It could just be a bad MS day, or it could be the result of my COVID-19 booster shot a couple days ago.  I received a third shot of the Moderna vaccine, which actually is a half-dose compared with the previous two. My wife and I are both older than 65,…Continue Reading

Disability Hurdles at the Oscars and in the COVID Fight

disability hurdles

What could the Academy Awards and COVID-19 possibly have in common for people with disabilities? Stay tuned, and I’ll tell you. First, the Academy Awards. The documentary “Crip Camp,” about a summer camp for young adults with disabilities, was up for an Oscar. Its co-director and co-star, Jim LeBrecht, has spina bifida and uses a motorized wheelchair. LeBrecht had hoped to ride up a special ramp from his front row…Continue Reading

Mask, Distance and Wash Even After a COVID Shot

COVID shot

I’ve had my shots, so I’m protected,” a friend recently told me, referring to his COVID-19 shot.  My wife and I also have received a COVID shot. More than a month has passed since our second shot of the Moderna vaccine, so we’re also protected — theoretically. But theory doesn’t always match reality, and I’ve been searching for a way to explain to people why we still wear our masks,…Continue Reading

The Latest Advice on COVID-19 and MS

COVID-19 and MS

The Multiple Sclerosis International Federation (MSIF) has issued new recommendations about how the coronavirus pandemic might, or might not, impact the lives of people with MS. The MSIF, a network of national MS societies from around the world, first issued recommendations about COVID-19 and MS last spring. But much has been learned about the virus since then, including how it affects people with MS. The new recommendations address whether MS leads to complications with…Continue Reading

Flu Shots – More Important Now Than Ever

Flu shot

Labor Day has come and gone here in the U.S. Now, flu season has arrived in the Northern Hemisphere. This isn’t the novel coronavirus we’ve been fighting all year. It’s the regular seasonal flu virus that’s knocking on our door again. Each year, some people with multiple sclerosis wonder if they should get a flu shot. My wife and I have been getting one for as long as I can…Continue Reading

COVID-19 and MS Treatment Recommendations

It’s been a few weeks since I’ve written about the impact that COVID-19 is having on people with MS. Since then, the picture has changed — not a lot, but enough for the MS International Federation to modify its observations about, and recommendations for, people with MS and our disease-modifying therapies (DMTs). The treatment equation for COVID-19 and MS is complex because of the dynamic nature of the way this…Continue Reading

My Laptop Needed a Weekend

Giving my laptop a weekend

My favorite line in the “Downton Abbey” TV series, uttered by the dowager played by Maggie Smith, is “What’s a weekend?” When you’re retired, if you’re working as a freelancer, or if like me you’re doing both, it’s easy to forget what day of the week it is. It’s also easy to work seven days a week. The stay-at-home mandates of COVID-19 have extended this problem to many people who…Continue Reading

My MS Routine Changes – Blame it on COVID-19

N95mask. Blame it on covid-19

I canceled my April blood draw. The protocol for Lemtrada (alemtuzumab) requires lab work each month because the treatment can have serious side effects. But I spoke with my neurologist and we decided that I could skip it. Blame it on COVID-19. My legs are stiffer than they were two months ago. My walking is slower. I’ve postponed my semiannual neurologist visit. Blame it on COVID-19. But my decisions have…Continue Reading

Covid-19, My MS and Joey Cocker

It’s comforting to have this guy, with his floppy ears, stretched out next to me as I sit here writing about my MS. I don’t know why but the fact that Joey, who is really my wife Laura’s cocker spaniel, has chosen to nap next to me is special. I’m not usually a softy for this kind of thing and Joey can be a real pain in the neck when…Continue Reading