News, info and tips for living with multiple sclerosis
Brain lesions, seen on super-strong MRI images as having rings, may indicate that someone’s multiple sclerosis will be aggressive. Researchers call these lesions “smoldering.”
When asleep, many people dream they can fly. Some dream about being naked in public, failing an exam, or (gasp!) about sex. The other night I dreamed that I was walking. I have that walking dream a couple of times a year. I’m walking along and all of a sudden I realize that I’ve left my two canes behind. My short dream a few nights ago, however, was better than…Continue Reading
An MS medication decision is one of the most difficult decisions for someone with MS and their neurologist to make. After 39 years with MS, and with four disease-modifying therapies (DMTs) on my medical chart, I’m definitely on the hit-it-fast, hit-it-hard side of that treatment decision. So, I was pleased to read an article in Brain & Life magazine reporting that “doctors today are less likely to wait to start…Continue Reading
If you’re using marijuana and have surgery scheduled, take heed. In Colorado, where medical marijuana was legalized in 2000 and recreational use was okayed in 2012, medical personnel are discovering that marijuana may complicate that surgery. The concern, according to an article in Kaiser Health News, is that marijuana use may “affect patients’ responses to anesthesia on the operating table” and “either help or hinder their symptoms afterward in the…Continue Reading
I’ve been writing The MS Wire for about three years now and it isn’t always easy to come up with fresh subjects. The other night my “idea well” was bone dry but then I came across something that primed the pump. In a private social media group for patient advocates, someone asked, “How do you keep a positive attitude with advocacy when dealing with chronically ill people? My main advocacy is…Continue Reading
After a period of temperatures of 95 degrees or more making it too hot to swim, early August has been comfortable enough for me to get back into my water exercise routine. The water temperature has been close to perfect and cool enough to keep me refreshed, though sometimes cooler than most people like. I’ve just finished two of the best workout I’ve had this season: 30 lengths swimming punctuated…Continue Reading
Have you ever read something and thought, “This is me, this is my MS?” It happened to me the other day as I read a post by Rachel Horne on the BartsMS blog. Horne writes about how some of us adapt to our MS diagnosis better, or at least differently, than others. She says that “some people with MS manage to adapt and even thrive despite all the disease takes…Continue Reading
Does your doctor think about what your medication costs will be when prescribing your MS meds? A few months ago I wrote a post about why some people stop, or skip, their MS meds. One of the reasons is that they can’t afford the out-of-pocket MS medication costs. A suggested solution is to talk with your doctor about cost whenever a new medication is suggested. But, according to the Centers…Continue Reading
The other night in bed my calf muscles started cramping. Again. Usually, it’s just my left leg, but that night it was both. The pain wouldn’t ease with my usual stretching routine so I reached for my little bottle of cannabidiol (CBD) oil. I’ve been experimenting with CBD oil on and off for a few months. I rub it into my left calf muscle before bed and on many nights…Continue Reading
Legos, it seems, are more than just a kids’ toy. People with some neurological conditions, including MS, are using those little, colored building blocks to build better lives for themselves. It’s Lego therapy. An article in the latest issue of Brain & Life uses Kathleen Jordan as one example. Jordan, who has MS, bought a big bag of Legos for her granddaughter. But she began to play with them herself.…Continue Reading