Do I Walk Better With the Bioness L300 Go?
I’ve used a Bioness L300 Functional Electronic Stimulator for almost 8 years to help me walk. Has the benefit been worth the cost?
Posts
Tongue Stimulation to Stimulate the Brain?
How does this potential MS therapy sound to you: a device that stimulates your tongue with a mild electrical current to help you walk better. A company is seeking approval from the U.S. Food and Drug Administration for a product that would do that. The device is called a portable neuromodulation stimulator (PoNS). It’s a flat card, about half the size of a credit card, with electrodes on its end.…Continue Reading
“Crip Camp” Brings me Face to Face With Disability
In early July, I wrote a blog post about Disability Pride Month. It’s not for me, I said. I questioned the word “pride” and asked whether we need a special month to advocate for a more inclusive world. Several people commented on that column — some supported my thoughts, while others were critical of what I wrote. A woman named Danielle wrote a particularly strong comment ending with: “I think…Continue Reading
My Cocker Spaniel Acts Like Me..or is it the Other Way Around?
It’s said that people look like their dogs. I’ve discovered that my Cocker Spaniel and I act like each other. I’ve written about Joey a couple of times over the past few years. For example, there was a post about the adventure of taking him for a walk using my scooter. Joey is my pal, my companion, and my stress reliever. The other night, lying in bed, I was thinking…Continue Reading
Do We Need a Nurse to Teach Us How Not to Fall?
I’d just gotten out of bed the other morning and was headed to the bathroom using just one cane when I tried to step over a dog toy on the floor. I went down slowly onto the carpet, so it was really no big deal. No harm, no foul, but I should have been using two canes, and I should have been more careful. I should know how not to…Continue Reading
Disability Pride Month? Not for Me
July is Disability Pride Month. Now, don’t flame me right away for writing this, but I don’t think we need a month highlighting disability pride — just like I don’t think people with MS need a month in October spotlighting rare diseases. MS is invisible but, with more than 2.3 million people carrying that diagnosis, it’s not rare. Disability Pride Month seems to have started as Disability Pride Day, which…Continue Reading
COVID-19 and MS Treatment Recommendations
It’s been a few weeks since I’ve written about the impact that COVID-19 is having on people with MS. Since then, the picture has changed — not a lot, but enough for the MS International Federation to modify its observations about, and recommendations for, people with MS and our disease-modifying therapies (DMTs). The treatment equation for COVID-19 and MS is complex because of the dynamic nature of the way this…Continue Reading
Really tired? Most People With MS Are
Are you tired? Really tired? Me, too. Most of us with multiple sclerosis are. How many really tired people is most? A small new study of 44 people with one of the progressive forms of MS found the answer is a little over 86%. (I’m surprised the number isn’t higher.) Those people described their fatigue as “tired,” “exhausted,” “wiped out” and having “little or no energy.” Half of patients reported…Continue Reading
Zeposia Becomes Latest Weapon in the MS Battle
I have some new MS treatments to tell you about. The first is Zeposia (ozanimod) . By my unofficial count, it’s the 19th disease-modifying therapy to become available in the U.S. to treat multiple sclerosis. The Food and Drug Administration approved Zeposia in late March. Pharmaceutical companies usually rush to put their newly approved medications in doctors’ offices. But this time, with COVID-19 raging, Bristol-Myers Squibb wasn’t in a hurry.…Continue Reading
Is This an MS Flare I’m Having?
Sitting down to write this, it’s hard for me to concentrate. I’d planned to write about some new MS mobile apps, but I can’t get my brain to focus on the task. I’ve been bragging about how I’ve been feeling sharper and better able to concentrate over the past several months, but not today. Distractions are more distracting than usual. For two days, my legs have felt weaker than usual…Continue Reading