News, info and tips for living with multiple sclerosis
You may have heard about the research that’s just been published about the Epstein-Barr virus and multiple sclerosis. The Harvard T.H. Chan School of Public Health study reports that being infected by EBV raises the risk of developing MS by 32 times. This isn’t a small or a short study. The researchers looked at 20 years of data covering more than 10 million U.S. military members. “This is a big…Continue Reading
In the past couple years, I’ve developed pain in a few areas of my body, especially my butt and back. Last winter, I tried physical therapy, but relief lasted only a short while. So, I think I’ll head back to the swimming pool to try some do-it-yourself aquatic therapy. In the pool I’ve been prompted to do this by a study recently published in JAMA reporting that for people with…Continue Reading
This is my book. It's designed for MS "newbies" but it's great info for everyone. A paperback and an ebook are available on Amazon.
I’m excited to share the news that an updated version of my MS book has been published. It has a new name, “The Multiple Sclerosis Toolbox,” a new cover and some new content. The name better reflects the purpose of the book: to give people new to MS some tools to better understand and deal with our puzzling disease. I think it’s also pretty useful for old-timers who are searching…Continue Reading
A little over a year ago, I wrote about whether people with multiple sclerosis (MS) should get a COVID-19 vaccine. I was anxious to be vaccinated as soon as I could, but I was also concerned about how the vaccines would affect someone with MS. Would the side effects be worse for MS patients than for healthy people? Would the disease-modifying therapies (DMTs) used to treat MS affect the ability…Continue Reading
I’m back in Florida for the next several months, having left cloudy, windy, chilly Maryland for the Gulf Coast. It’s been sunny and in the low 80s for the past few days, and my multiple sclerosis is feeling just fine. A lot of people with MS avoid the heat, but heat and sunshine go hand in hand. I always feel better, physically and mentally, when I’m in the sun. A…Continue Reading
I thought I finally had this bladder thing licked. After years of urinary urgency and frequency, I’d been doing much better. I was sleeping at least seven hours a night without having to go to the bathroom, and bathroom trips were less frequent in the daytime, too. When traveling by car, the once common question “How long to the next rest area?” became less of a concern. During our annual…Continue Reading
It’s been five years since I began treatment with the MS medication Lemtrada. Now, my Lemtrada journey is done, and it’s been quite a trip.
There are continuing signals that the Epstein-Barr virus (EBV) is a fuel that can spark a multiple sclerosis fire. EBV is a herpes virus that causes infectious mononucleosis, more commonly known as mono. Sometimes called the “kissing disease” because the virus that causes it is easily spread through saliva, mono causes extreme fatigue and body aches. It’s estimated that 90% of Americans are infected by EBV by the time they’re…Continue Reading
I had a great night’s sleep the other night. I fell asleep quickly and slept straight through the night for nearly seven hours. When I got up in the morning, I felt refreshed, which is exceedingly rare for me. This has happened a few more times since then. What changed? I’ve been sleeping in the same bed with the same blankets and the same wife for years. I haven’t made…Continue Reading
I’m hurtin’ a little today. I have mild muscle aches, a bit more fatigue than usual, and dragging legs. It could just be a bad MS day, or it could be the result of my COVID-19 booster shot a couple days ago. I received a third shot of the Moderna vaccine, which actually is a half-dose compared with the previous two. My wife and I are both older than 65,…Continue Reading