Category Archives: General Posts

If You Have MS You Need to Speak Up Now

This came into my inbox today and I think it’s important to pass it along to as many of us with MS, or another chronic disease, in the U.S. as possible. We may never have another chance to stand in the path of these cuts.

Health care ad

Here’s why we’re opposed to this bill:
  • Many families will have to pay higher premiums.
  • If you’re fifty or older, insurers could charge far more than they do now.
  • There are millions of Americans on Medicaid, including children, the elderly, and people with disabilities that would be cut off completely.
  • People with pre-existing conditions could be priced out of meaningful insurance.
  • Americans could face lifetime and annual limits on care.

Speak up now before it’s too late.

Don’t let Congress jeopardize your health. Call your U.S. Senators at 202-224-3121 and/or write to them today.

 

I’m Talking About MS Live on Facebook!

I’ll be live today, Monday April 24th, on the Multiple Sclerosis News Today Facebook page to talk with you about my experiences with MS. I hope you’ll join me at 5pm edt / 9pm gmt and bring your questions.

 

 

The music of MS

[This post first appeared as my column in http://www.multiplesclerosisnewstoday.com]

You may not have heard this song, but I bet its lyrics will strike a chord.

I cannot feel my body.
I cannot feel my face.
My legs are pins and needles
and my mind is a disgrace.
I see in double vision,
so there’s more of you to admire.
Got a freaky disposition
and my soul is on fire.

The title of the song is “Mrs. Hypochondriac,” but singer-songwriter Alu’s symptoms are far from imaginary. Alu, (pronounced AY-loo) has MS. As she explains on her website: “Prior to being diagnosed with Multiple Sclerosis, I had a lot of weird symptoms that doctors couldn’t explain. People often accused me of being a hypochondriac. It was a really difficult time.” She calls the song “a story of survival — surviving a brief tumultuous marriage, divorce, and MS diagnosis.”

Alu was diagnosed with MS in 2012. Not long after that she wrote another song with an MS connection, called “Marie.” It ends:

Oh, Marie.
Life is never what it seems.
You can plan and prepare
but please beware:
Life will humble you.
Life will humble you.
This life will humble you.

Alu isn’t the only performer singing about MS. On YouTube, “Irishbear76” takes a more direct approach:

Possibly the most unique song, and certainly the most positive one that I’ve discovered, was written and performed by Kristen King. “Impervious” tells the story of how stem cell therapy changed her life:

Have you put your MS experience to music? I’d love to hear it, if you’re willing to share. Just drop a link, below, in Comments.