News, info and tips for living with multiple sclerosis
We had a great live chat, today, on the MS News Today Facebook page. I had the pleasure of talking about my MS experiences and answering over 200 questions for about an hour. ICYMI, you can click here to see the video. More of these live chats are planned in the future, so stay tuned.
I’ll be live today, Monday April 24th, on the Multiple Sclerosis News Today Facebook page to talk with you about my experiences with MS. I hope you’ll join me at 5pm edt / 9pm gmt and bring your questions.
To scoot or not to scoot? Is is better to drag your legs around for as long as you can or to give in and get yourself a set of electric wheels? That decision prompted this vent on a multiple sclerosis Facebook group recently: “I’m just wondering if anyone has this happen to them. Every time I go to the store I have someone roll up on me in their…Continue Reading
(This is a sightly updated version of a column of mine that first appeared on www.multiplesclerosisnewstoday.com) Earlier this year Bioness announced that the U.S. Food and Drug Administration had cleared its new “L300 Go” functional electronic stimulator (FES). It’s an upgrade of the original “L300” that I’ve been using for more than five years. Without the “L300” strapped to my left leg it’s difficult for me to walk more than…Continue Reading
You probably talk about multiple sclerosis (MS) symptoms, drugs and therapies when you meet with your neurologist, but I’ll bet that most people don’t talk very much about working. Being able to work, and continuing to hold down a job, is important. I see concerns about this all the time on the online forums where we MS patients hang out. Work should be a part of that medical discussion. In…Continue Reading
(This post first appeared as my column on www.multiplesclerosisnewstoday.com) One of the most troubling symptoms of multiple sclerosis, especially for those of us who are still working, is “brain fog”…not being able to concentrate… not feeling “sharp” when working on a task or solving problems. So it was interesting to read about a new study that reports that patients with MS had better problem-solving ability and response time after training with…Continue Reading
(This first appeared as my column in www.multiplesclerosisnewstoday.com) There is some good news about stem cell therapy and some that’s not so great. A just-published study concludes that one form of human stem cell therapy is more effective at treating multiple sclerosis than the best of the MS medications being used currently. The not-so-good news is that approval of this therapy in the U.S. still seems to be a long…Continue Reading
[This first appeared as my column in www.multiplesclerosisnewstoday.com] Browsing through some multiple sclerosis Facebook groups the other day I was reminded of the line from the 1967 movie Cool Hand Luke: “What we have here is a failure to communicate.” These posts jumped out at me: So when my neuro says he wants me to start physical therapy, does that mean I’m going to hear a call from them or…Continue Reading
[This post first appeared as my column in www.multiplesclerosisnewstoday.com] You may not have heard this song, but I bet its lyrics will strike a chord. I cannot feel my body. I cannot feel my face. My legs are pins and needles and my mind is a disgrace. I see in double vision, so there’s more of you to admire. Got a freaky disposition and my soul is on fire. The…Continue Reading
I rarely re-blog something but this post from Jen just struck a chord. My occasional, but recurring, dream is that I’m walking and suddenly realize that I don’t have my cane. Sometimes I care…sometimes I don’t.