News, info and tips for living with multiple sclerosis
(This first appeared as my column in www.multiplesclerosisnewstoday.com) “Round round get around. I get around.” I was humming that classic 1960s Beach Boys tune this morning (yes, I’m that old) as I thought about a feature story that I saw on one of the TV networks the other night. The story profiled Cory Lee. Cory has spinal muscular atrophy, which means he’s one of us gimps who get around on…Continue Reading
(This post first appeared as my column on www.multiplesclerosisnewstoday.com) I thought that I’d finish writing this last night, but I was too tired. Same thing the night before…and I’m sure this sounds familiar to a lot of you. The National Multiple Sclerosis Society estimates that about 80 percent of the people who have MS have fatigue as one of their symptoms. (Only 80 percent? The other 20 percent must be…Continue Reading
[This post first appeared as one of my columns on www.multiplesclerosisnewstoday.com] You don’t see people with disabilities very often in TV ads. And when you do, the person with the handicap is usually playing a secondary role, or the ad uses the disabled person for an emotional appeal. It’s not real-life. It’s not us. So, a tip of my hat to the candy company Mars Chocolate UK for producing some…Continue Reading
Cheryl Hile runs a marathon in South Africa. Pic courtesy C. Hile
(This is an update of my column posted last week on www.multiplesclerosisnewstoday.com) Tripping, falling and bloody knees. Been there. Done that. (Who with MS hasn’t)? But this wasn’t me. This was Cheryl Hile and it was happening to her as she was running a half marathon in Carlsbad, California. Cheryl had been running marathons for half a dozen years when, in 2006, she was diagnosed with Multiple Sclerosis. She says…Continue Reading
[This post first appeared last month in my column on www.multiplesclerosisnewstoday.com] Feeling tired? No surprise there. Fatigue is as much a part of living with Multiple Sclerosis as sand is a part of the beach where I live. It’s interesting, then, that neurologists seem to have no good system for measuring levels of MS fatigue or any treatments that are really effective over the long term. Physiologists at Colorado State University…Continue Reading
People with MS often wonder if their MS is affected by what they eat. Articles about the reported benefits of various diets appear regularly. Now, researchers at the University of Iowa are going to study two of the most well know MS diets to see what impact they have on MS symptoms, specifically on the level of a patient’s MS-related fatigue. Both MS Diets Eliminate Meat The diets to be…Continue Reading
(This post appeared as my regular column on www.multiplesclerosisnewstoday.com) Flight is freedom in its purest form, To dance with the clouds which follow a storm; To roll and glide, to wheel and spin, To feel the joy that swells within; To leave the earth with its troubles and fly, And know the warmth of a clear spring sky — Gary Claud Stokor I’ve been there. I’ve done that. I’ve climbed…Continue Reading
[This is an updated version of a post that first appeared in my weekly column on www.multiplesclerosisnewstoday.com] Do you remember when you first applied for a handicapped license plate? I put it off for quite a while after I was diagnosed. After all, I could easily walk several city blocks. I could still play tennis. Why did I need to park in a handicapped place? But, there were days…Continue Reading
I’m about to start a new adventure: Exercise. Well, it’s not really new. I swim some laps most days in the summer, weather permitting. In the cooler months I do some upper body strength exercises a couple of days a week, my spirit permitting. But, in all the years that I’ve had Multiple Sclerosis I’ve never really had a structured exercise program. Today I’m investigating a way to start down…Continue Reading
Have you seen the TV ad for Tecfidera? The one that shows a woman being able to do all sorts of active things because she’s on the drug, which has reduced the frequency of her Multiple Sclerosis exacerbations? I was surprised when I saw it on my screen one day. Frankly, I didn’t think there was enough of an audience of potential Tecfidera users to justify the cost of this…Continue Reading