News, info and tips for living with multiple sclerosis

MS Isn’t Rare, it’s Invisible

MS isn't rare

Feb. 29 was Rare Disease Day. It’s a day on which those in the rare disease community attempt to raise awareness about their diseases. I don’t think MS should be included. MS isn’t rare. About 2.5 million people worldwide have multiple sclerosis. When I was working in a newsroom of about 100 people three of us had MS. And everyone seems to know someone with our disease. It is rare,…Continue Reading

A Symbol to Reveal My Invisible Disability

MS isn't rare

Don’t tell me how good I look … even if I do look good. Invisible Disabilities Week took place earlier this month. And, as people with MS know very well, multiple sclerosis can be as invisible as Casper the Ghost. An invisible disability isn’t limited to people with MS, but we have to be close to the top of the list of people who are told they look good when…Continue Reading