News, info and tips for living with multiple sclerosis
I’ve been living with MS for nearly 39 years and I’ve never read the doctors notes my neurologist has written during my office visits. She did hand me a thick folder of notes several years ago with material dating back to my diagnosis in 1980. But, I filed it away and when my wife and I downsized a few years ago I shredded it. I wish I hadn’t because, after…Continue Reading
More than 15 MS medications, or disease-modifying therapies (DMTs), are available in most countries to treat MS. DMTs come in the form of injectables, infusions, and pills. Some are new, others have been around for more than 20 years. Some have a greater possibility of serious side effects than others. Some DMTs are highly effective at slowing or stopping disease progression; others, not so much. It’s a difficult choice to…Continue Reading
Patients want to be more involved in their healthcare, but it’s not an easy process. I’ve written before about the hurdles we have to overcome to get some healthcare providers to communicate with us, to listen to what we have to say about our medical problems, and even to return our phone calls. The problems extend from the top down to the receptionist and other non-medical office staff. A group…Continue Reading