News, info and tips for living with multiple sclerosis

MS and falling the best way

[This item first appeared as my column on www.multiplesclerosisnewstoday.com] Uh oh! My cat, T.J., is under my feet trying to nibble my ankles as I stumble toward the bathroom in the middle of the night. I know what’s about to happen. As I try not to step on T.J.’S tail, it’s already started. I’m going down. It all happens in about three seconds, and how I handle those three seconds…Continue Reading

Pills, shots or infusions for your MS?

[This first appeared as my column on www.multiplesclerosisnewstoday.com] Oral multiple sclerosis meds appear, more and more, to be the first choice of patients who are just beginning to receive an MS treatment. A recent report by the independent marketing research firm Spherix Global Insights shows that oral disease-modifying therapies captured a significantly higher share of the market at the end of 2016 compared to 2015.  Tecfidera was at the top of the…Continue Reading

Have a say in what MS researchers research

Our friends at iConquorMS have a couple of new, quick on-line surveys available for MS patients to answer.  I’ll tell you about them in bit but first let me tell you about iConquorMS. (I first wrote about this groups a few weeks ago the column I write for www.multiplesclerosisnewstoday.com). Have you ever wondered how your MS experience compares with others? Your ability to go out and do things? The therapies…Continue Reading

Lemtrada for my MS: Ups and downs

It’s been a month since I last posted here.  I’m sorry.  I’ve been spending my time riding a roller coaster. It’s the roller coaster of reactions that I was told to expect following my Lemtrada infusions.  I managed to avoid most of those reactions for the first month and I thought that I was home free.  Ha!  What could I have been thinking? Month-two began with a good lab report…Continue Reading

Starting Down the Lemtrada Road

[This is an updated version of my column that first appeared on www.multiplesclerosisnewstoday.com] The final drip of my first week of Lemtrada infusions will drop in about 30 minutes.  The headline is: It was a good week with no significant problems or discomfort.  I’ll be writing about this experience, in detail, in my next column.  But first, for those who aren’t yet up to speed on my journey, some background.…Continue Reading

Beating the MS Clock

Louise Kennedy

Photo by Mark Kennedy, Chattanooga Times Free Press

[This post first appeared as my column on www.multiplesclerorisnewstoday.com] I’m 68 years old.  I’ve had multiple sclerosis since I was 32.  I’m not sure where I expected this disease would take me when I was diagnosed 36 years ago but I hoped that it wouldn’t steal too much of my life from me.  I certainly never thought of the possibility that I might live to a really old age with…Continue Reading

Take Your MS on the Road

(This first appeared as my column in www.multiplesclerosisnewstoday.com) “Round round get around.  I get around.” I was humming that classic 1960s Beach Boys tune this morning (yes, I’m that old) as I thought about a feature story that I saw on one of the TV networks the other night.  The story profiled Cory Lee.  Cory has spinal muscular atrophy, which means he’s one of us gimps who get around on…Continue Reading

A Letter to a Scared Young Woman

(This first appeared as my column on www.multiplesclerosisnewstoday.com) Dear Lauren Parrott, I know you’re scared.  The fears that you shared in your video blog ring true to any of us who have faced the unknowns of a new MS medicine. I’ve been there. I’ve gone through three major multiple sclerosis drugs over the 35+ years that I’ve been fighting MS.  I was a subject in the clinical trial of Avonex;…Continue Reading

Are You Ready for Bed at Noon?

Fatigue

(This post first appeared as my column on www.multiplesclerosisnewstoday.com) I thought that I’d finish writing this last night, but I was too tired. Same thing the night before…and I’m sure this sounds familiar to a lot of you. The National Multiple Sclerosis Society estimates that about 80 percent of the people who have MS have fatigue as one of their symptoms. (Only 80 percent?  The other 20 percent must be…Continue Reading

“Bracing” Yourself for MS

(This post first appeared as one of my columns on www.multiplesclerosisnewstoday.com) One of the MS blogs that I follow is written by Jen, who lives in England.  It’s called Tripping Through Treacle.  (Treacle is a thick, molassas-like, syrup). Doesn’t that neatly sum up the lives of many of us in just three, alliterative, words?  From MS newbies to old timers like me, we worry (or have worried) about tripping.  Many…Continue Reading