News, info and tips for living with multiple sclerosis
I rode a recumbent bike for 15 minutes today. That’s a record for me, and it felt great. The bike ride was part of an overall workout routine that I’ve set up for myself at the gym. The workout mirrors what I was doing about 15 years ago, when I was still working full-time. That routine was set up with the help of a personal trainer, and it includes upper-body…Continue Reading
I’ve met Humpty Dumpty, and he is me. I made that discovery the other night when I had a bad fall. It wasn’t off a wall; it was just off a chair, but it felt like I’d tumbled off Humpty’s high ledge. It shouldn’t have happened. I’ve lived with MS for nearly 40 years and I’ve had my share of trips, stumbles, and falls. I’ve even written a post about…Continue Reading
There’s been a lot of risk versus rewards chatter on social media following the recent decision by the European Medicines Agency to initiate a safety review of Lemtrada (alemtuzumab). The EMA has restricted use of the medication within the European Union while that review is underway. That’s worrying some people who are using Lemtrada or who are about to start. For me, it’s really a question of risks versus rewards. The EMA…Continue Reading
Robert Scola Jr. is a federal judge in Miami and he’s just recused himself from a case involving the UnitedHealthcare (UHC) insurance company. The case is one of two filed in Miami over the last two months claiming that UHC has improperly denied coverage for a specific cancer treatment. Scola calls that denial “immoral and barbaric.” He put those words on paper in his recusal order. In his order, Scola…Continue Reading
Former Vice President Joe Biden has been in some hot water recently because of his habit of hugging some of the people he meets. More generally, in today’s society, some of the casual social touching that once went on, particularly in the workplace, has become out of bounds. So, is it OK for your doctor to give you a hug? I spotted that subject on Twitter the other day. Rhea…Continue Reading
People who cover medical issues often write about mouse studies. These stories can regularly be found on traditional news outlets, both broadcast and print, as well as online platforms. I’m one of the people writing about mouse studies, though I try to be selective and limit my reporting to studies that seem very significant or unusual. Concerns about mouse study reporting has now generated a Twitter feed: @justsaysinmice. James Heathers,…Continue Reading
Most healthy people probably don’t have to worry about a fungus named Candida auris, or simply C. auris. But if your immune system is compromised, it’s a different story. Health officials say C. auris should be of special concern to people whose immune systems are not at full strength, and I’m one of them. I’m being treated with Lemtrada (alemtuzumab). It, like Ocrevus (ocrelizumab), Mavenclad (cladribine), and aHSCT (autologous hematopoietic stem cell…Continue Reading
Have you ever thought about getting on a horse and riding? It may sound impossible for someone with MS, but it’s not. In fact, equine therapy can help your body and your mind, and it’s fun. Several years ago, in my early 60s and not having ridden a horse since I was a kid, I was back in the saddle with an instructor from the Great and Small therapeutic riding…Continue Reading
There are two types of people with MS: Those who have bladder problems and those who will have them. That may be an oversimplification but I’d be willing to bet that you, like me, have had that gotta-go-gotta-go problem too many times to count. Sometimes you make it to the loo, sometimes you don’t. And if you do make it in time, the urgency might then become a now-I-can’t-go bladder…Continue Reading
If you’re a member of the baby boomer generation, or if you just like the music of the 1960s and ’70s, you probably know Paul Simon’s “50 Ways to Leave Your Lover“: “‘The problem is all inside your head,’ she said to me. ‘The answer is easy if you take it logically. I’d like to help you in your struggle to be free. There must be 50 ways to leave your…Continue Reading