News, info and tips for living with multiple sclerosis

Can We Attack EBV to Fight MS?

Epstein-Barr EBV

There are continuing signals that the Epstein-Barr virus (EBV) is a fuel that can spark a multiple sclerosis fire. EBV is a herpes virus that causes infectious mononucleosis, more commonly known as mono. Sometimes called the “kissing disease” because the virus that causes it is easily spread through saliva, mono causes extreme fatigue and body aches. It’s estimated that 90% of Americans are infected by EBV by the time they’re…Continue Reading

I’m Suddenly Sleeping Sounder. How come?

Man sleeping in bed

I had a great night’s sleep the other night. I fell asleep quickly and slept straight through the night for nearly seven hours. When I got up in the morning, I felt refreshed, which is exceedingly rare for me. This has happened a few more times since then. What changed? I’ve been sleeping in the same bed with the same blankets and the same wife for years. I haven’t made…Continue Reading

I’ve Had My COVID-19 Booster

covid-19 booster

I’m hurtin’ a little today. I have mild muscle aches, a bit more fatigue than usual, and dragging legs. It could just be a bad MS day, or it could be the result of my COVID-19 booster shot a couple days ago.  I received a third shot of the Moderna vaccine, which actually is a half-dose compared with the previous two. My wife and I are both older than 65,…Continue Reading

Cold, Demyelination and MS

cold

I hate the cold. It triggers my bladder and stiffens my legs. When the leaves start to turn in Maryland, I start thinking about the palm trees in Florida. So, I was interested to read research from the University of Geneva that indicates that exposure to cold may stop, and even reverse, nerve demyelination that occurs in multiple sclerosis (MS). These scientists applied the concept of life history theory to…Continue Reading

Time to Make a Date for the Flue Vaccine

flu vaccine

A couple weeks ago, my wife and I rolled up our sleeves and got our shots again. No, not the COVID-19 vaccine. We’ve already had two of those shots, and expect to receive a third before Thanksgiving. Our latest shot was the seasonal flu vaccine, which we’ve gotten every year for as long as I can remember. With all of the attention on COVID-19 vaccines, you may have forgotten about…Continue Reading

Are You Ready for Doctor Amazon?

Dr. Amazon

Would you sign up for healthcare from the place where you buy books, bluejeans, and bagels? Amazon thinks you might, and the company is moving closer to becoming the doctor in your house, according to a report last month by Insider. Amazon has been dabbling in the healthcare business for a few years. In January 2018, it joined JPMorgan Chase and Berkshire Hathaway in launching a program called Haven, which…Continue Reading

Big Insurance Sues Big Pharma Over Copay Funding

copay lawsuit

People living with multiple sclerosis know that the medications used to treat it are expensive. According to the National Multiple Sclerosis Society, the median annual price of brand-name disease-modifying therapies (DMTs) last year was $91,835. Five of them carried a price tag of more than $100,000 a year. Many pharmaceutical companies help defray the out-of-pocket costs of their DMTs for patients. But U.S. law strictly limits how this can be…Continue Reading

Generics or Brand Names: Is a Pill a Pill?

generics

I take a bunch of pills every day. Most of them are generics. I’ve used baclofen to treat my leg spasticity, oxybutynin for my bladder, and modafinil to fight my MS fatigue. There’s also atorvastatin to keep my cholesterol in check, and levothyroxine to do the same for my thyroid levels. All are generics. Over the years, I’ve read many social media comments from people questioning whether generics are as…Continue Reading

Can You Give Your Pain a Pain Scale Number?

Lately, I’ve been thinking about pain — specifically, how to match a number to my pain. While lying on a treatment table my physical therapist Richard asked me to rate my pain, on a scale from zero to 10, as he manipulated my shoulder. I’m sure many of you have been asked something similar by a healthcare provider, as it’s a standard way of assessing pain. But it doesn’t make…Continue Reading