News, info and tips for living with multiple sclerosis
My wife and I recently returned from a long weekend in upstate New York, where we attended my college reunion. It was a biggie — my 50th — and had been delayed a year due to COVID-19. The sun was shining, and it felt like spring for the three days we were there, which is unusual for Ithaca, New York, in October. As students, we used to say there are…Continue Reading
Kaiser Health News, a group of healthcare journalists that I follow and that produces excellent, well-researched, reporting, is producing a webinar on ageism in healthcare. I think many people with MS have serious problems receiving equal treatment as they age. So, I’m pleased that KHN is providing this discussion. DATE: Thursday, October 21, noon to 1:30 p.m. Eastern time. WHO: Judith Graham, Navigating Aging columnist for Kaiser Health News, will…Continue Reading
Would you sign up for healthcare from the place where you buy books, bluejeans, and bagels? Amazon thinks you might, and the company is moving closer to becoming the doctor in your house, according to a report last month by Insider. Amazon has been dabbling in the healthcare business for a few years. In January 2018, it joined JPMorgan Chase and Berkshire Hathaway in launching a program called Haven, which…Continue Reading
Here’s an opportunity to participate in a study that compares an in-person MS exercise program with one that’s done on-line. In the STEP for MS program, participants will exercise about one hour, twice a week, for 16 weeks. Some will do this in a clinic and some at home. A trained “coach” will help participants learn how to exercise and will provide encouragement as they do. There will be clinic…Continue Reading
Lately, I’ve been thinking about pain — specifically, how to match a number to my pain. While lying on a treatment table my physical therapist Richard asked me to rate my pain, on a scale from zero to 10, as he manipulated my shoulder. I’m sure many of you have been asked something similar by a healthcare provider, as it’s a standard way of assessing pain. But it doesn’t make…Continue Reading
Lia Coryell says she wanted to die. According to The New York Times, after fighting COVID-19 last winter, Coryell 56, was hit with heart and kidney failure, pneumonia, and shingles. This was in addition to living with progressive multiple sclerosis. “I’ve had to fight this really dark demon that says: ‘Why are you fighting this? Just let go, let go,’” Coryell told the Times‘ Ben Shpigel. “But I’ve never let go…Continue Reading
I wish I could walk a mile in my shoes but, even with a new pair, that’s not going to happen. My MS limits me to about 100 steps while using two canes and a functional electrical stimulation device strapped under my left knee. Because walking is so difficult, the choice of my MS shoe is important. Here’s what I want in my MS shoes I like shoes with a…Continue Reading
Now that a third COVID-19 shot has been approved in the U.S. for immunocompromised people, and vaccine boosters are expected to be available to the general public sometime after Sept. 20, Walgreens and CVS have lost no time in offering the additional shot to those who qualify. Like their previous policies for vaccine shots and COVID-19 tests, the stores require people to make appointments online, and they’ll be happy to jab you. But should you get that…Continue Reading
Can I survive without dessert? Can I live without ice cream, chocolate, and fruit pies, or with only a small amount of beef when I want a burger? The other day, my wife decided to start the ketogenic diet to try to lose some weight. I’m a skinny guy, so I don’t need to do that. But after reading about various MS diets over the years, I’ve been thinking about…Continue Reading
May I vent, please? In the five years that I’ve been writing this blog, I don’t think I’ve ever used it to get something off my chest. But I need to today. It’s about an experience I had at a restaurant the other night. My wife and I went to dinner with our son, daughter-in-law, and two grandkids. It was a pleasant evening, and we decided to eat outdoors in…Continue Reading