The MS Wire

News, info and tips for living with multiple sclerosis

Category: Living with MS

My Immune System: Suppressed, Compromised or Supercharged?

immune system

Lately, I’ve seen a lot of incorrect information on social media about how multiple sclerosis affects our immune system. Some of it seems to be generated by concerns that MS makes someone more susceptible to COVID-19, or confusion about whether people with MS can safely receive a COVID-19 vaccine. Here are a couple examples: Immunosuppressed or immunocompromised? One person with MS wrote online that he is “immunosuppressed.” But MS does…Continue Reading

I Took a Tumble That Could Have Been Worse

Scary tumble

Ooooops!” Actually, I spit out a shorter, one-syllable word as I took a stupid, scary tumble…one of the worst I’ve had in 40 years of living with MS. But this is a family column. My last scary tumble, a few years ago, happened from a sitting position, and I fell onto the carpet. This one happened while I was standing, and I tumbled onto the concrete floor of the parking…Continue Reading

Caregiver Abuse in MS Families

This is disturbing and, unfortunately, not surprising. More than 50% of people with advanced multiple sclerosis report they’ve been mistreated by a family member or friend who cares for them, according to the results of a survey by researchers at the University of California, Riverside. Much of that mistreatment (44.2%) is described as psychological, often involving being insulted or sworn at in anger. This doesn’t surprise me, because I often…Continue Reading

Think Hands as You Think MS

think hands

My left hand was numb and weak when I was first diagnosed with multiple sclerosis. For years after that, symptoms above my waist seemed just as prevalent as those below it. Yet, there were no tests being used that measured my waist-up disability level — nothing equivalent to the Expanded Disability Severity Scale (EDSS) that neurologists have used for decades to measure the level of disability of people with MS.…Continue Reading

Did Amazon Have the Secret to Less Costly Healthcare?

Amazon healthcare costs

The answer to whether Amazon, in partnership with a pair of financial giants, can make healthcare more accessible and less expensive for its workers is: Apparently, it can’t. About two years after rolling out a project known as Haven, the plug is being pulled. The idea had been for Amazon to pool resources with the investment and banking firms Berkshire Hathaway and JPMorgan Chase & Co. “to make primary care…Continue Reading

Physical Therapy is Back on My MS Agenda

Physical therapyt is back on my agenda

Are you sitting down? I am, and I’ve been doing too much of that this year. For the past six months, I haven’t been using our community exercise room. I haven’t been able to swim. I haven’t gone outside that much. I’ve become a couch potato, and you know why: It’s the virus. This is not a good thing. My back has become chronically stiff. Getting out of my car…Continue Reading

Time to Head South, or Not?

cover-19 travel

The temperature’s dropping. The wind is whipping. It’s time for my wife, Laura, and me to head south, leaving cold, uncomfortable Maryland for the welcoming warmth of southwest Florida. Or is it? Though I once swore I’d never become a snowbird, a few years ago, we spent a week on Florida’s Gulf Coast, where friends had just bought a condo. Before long, we’d spent four winters there and then bought…Continue Reading

Tattoos and MS: Can You Have too Much Ink?

tattoos and ms

Many people with MS get tattoos. Often it’s a way to deliver a statement about MS to the world, or perhaps it’s a personal message to the person sporting it. But a new report cautions that too much ink might create a health issue for some folks. According to that study published in the Journal of Applied Physiology, the concern is heat, and we know how bad heat can be…Continue Reading