News, info and tips for living with multiple sclerosis
Happy anniversary to us! My wife, Laura, and I are celebrating our 45th anniversary this month. It’s hard to believe, especially because the divorce rate for someone with multiple sclerosis is higher than it is for a healthy person. A review of records in the Danish MS-Registry a few years ago showed that the probability of a marriage continuing after five years was 86% for MS patients versus 89% in…Continue Reading
Paging Dr. Google. OK, maybe I’m being overly dramatic, but The Wall Street Journal recently reported that Google and HCA Healthcare have struck a deal to share data and create healthcare algorithms. HCA plans to use the data system to improve operating efficiency, monitor patients, and even guide some decisions by doctors. So, the concept of a “Dr. Google” isn’t far-fetched. HCA Healthcare has clinics at 2,000 locations in 21…Continue Reading
“Why aren’t researchers doing more to find an MS cure?” “Why isn’t more effort and money devoted to this?” I regularly read comments like these after I write a column about a new disease-modifying therapy (DMT) that’s either being tested or has just been approved. Some, like Multiple Sclerosis News Today columnist Jennifer Powell, have faith that a cure will come, but many others feel a cure is far, far…Continue Reading
Sometimes it seems as if people with MS are asked to flip a coin to make what’s arguably the most important decision they make about their treatment: which disease-modifying therapy (DMT) to use. More than 20 DMTs are approved in the U.S. and many of those are available in the rest of the world. There are pills, injections, and infusions, and their efficacy, side effects, and costs vary significantly. One…Continue Reading
What could the Academy Awards and COVID-19 possibly have in common for people with disabilities? Stay tuned, and I’ll tell you. First, the Academy Awards. The documentary “Crip Camp,” about a summer camp for young adults with disabilities, was up for an Oscar. Its co-director and co-star, Jim LeBrecht, has spina bifida and uses a motorized wheelchair. LeBrecht had hoped to ride up a special ramp from his front row…Continue Reading
As comic Rodney Dangerfield might have said, older people with MS “just don’t get no respect.” By older, I mean those of us who are 55 and up. By respect, I mean attention from researchers and from some neurologists. So, as I approach my 73rd birthday, I have to tip my cap to doctors Eva Strijbis, Anne Kerbrat, and John Corboy for some respect they’re showing to us older people…Continue Reading
Many people with MS avoid Florida. I crave it. I like it hot. My wife and I finally returned here in early March, escaping dreary, rainy, and windy Maryland after we received our COVID-19 vaccines. Since we arrived, the weather has been wonderful, with few clouds and temperatures warm enough for swimming outdoors. Swimming, or at least pool walking, is important to me. I try to walk at least 500…Continue Reading
I’ve had my shots, so I’m protected,” a friend recently told me, referring to his COVID-19 shot. My wife and I also have received a COVID shot. More than a month has passed since our second shot of the Moderna vaccine, so we’re also protected — theoretically. But theory doesn’t always match reality, and I’ve been searching for a way to explain to people why we still wear our masks,…Continue Reading
Lately, I’ve seen a lot of incorrect information on social media about how multiple sclerosis affects our immune system. Some of it seems to be generated by concerns that MS makes someone more susceptible to COVID-19, or confusion about whether people with MS can safely receive a COVID-19 vaccine. Here are a couple examples: Immunosuppressed or immunocompromised? One person with MS wrote online that he is “immunosuppressed.” But MS does…Continue Reading
Ooooops!” Actually, I spit out a shorter, one-syllable word as I took a stupid, scary tumble…one of the worst I’ve had in 40 years of living with MS. But this is a family column. My last scary tumble, a few years ago, happened from a sitting position, and I fell onto the carpet. This one happened while I was standing, and I tumbled onto the concrete floor of the parking…Continue Reading