News, info and tips for living with multiple sclerosis

My Lemtrada Journey: Round 2 Plus 18 Months

Lemtrada journey

It’s time for another update on how I’ve been doing with my Lemtrada journey. The headline is I’m doing well. Lemtrada (alemtuzumab) is a disease-modifying therapy (DMT) delivered in two stages. The first stage entails a series of five daily infusions, while the second stage involves three daily infusions, given a year later. The medication has shown some success in slowing or halting MS disease progression in many, and has…Continue Reading

How Old is Too Old for Aggressive MS Treatment?

Aggressive MS treatment

A question raised by neurologist Gavin Giovannoni on the Barts-MS blog lit up my radar recently. Dr. G asked whether “elderly” people with MS should be treated differently than those who are younger. The question arises because a case of progressive multifocal leukoencephalopathy (PML), a serious brain disease, was recently reported in a 76-year-old MS patient. According to the blog, citing Roche Pharmaceuticals, the man has had MS a long…Continue Reading

Flu Shots and Vaccines: Neuros Say Benefits Outweigh Risks

New vaccine guidelines from neurlogists' association

This is the time of year when my wife and I start thinking about getting our flu shots. We’ve already had the pneumonia and the older shingles vaccine and hope to soon update with the new shingles vaccine, Shingrix (recombinant zoster vaccine). These vaccines are OK with my neurologist and my primary care doctor. They’re also OK with the American Academy of Neurology. The academy has updated its vaccine guidelines…Continue Reading

Making the Right MS Medication Decision

Making right MS medication decisionn

An MS medication decision is one of the most difficult decisions for someone with MS and their neurologist to make. After 39 years with MS, and with four disease-modifying therapies (DMTs) on my medical chart, I’m definitely on the hit-it-fast, hit-it-hard side of that treatment decision. So, I was pleased to read an article in Brain & Life magazine reporting that “doctors today are less likely to wait to start…Continue Reading

Marijuana May Complicate Surgery

marijuana complicate surgery

If you’re using marijuana and have surgery scheduled, take heed. In Colorado, where medical marijuana was legalized in 2000 and recreational use was okayed in 2012, medical personnel are discovering that marijuana may complicate that surgery. The concern, according to an article in Kaiser Health News, is that marijuana use may “affect patients’ responses to anesthesia on the operating table” and “either help or hinder their symptoms afterward in the…Continue Reading

Does Your Neuro Consider Your MS Medication Costs?

medication costs

Does your doctor think about what your medication costs will be when prescribing your MS meds? A few months ago I wrote a post about why some people stop, or skip, their MS meds. One of the reasons is that they can’t afford the out-of-pocket MS medication costs. A suggested solution is to talk with your doctor about cost whenever a new medication is suggested. But, according to the Centers…Continue Reading

MS medication decisions need guidance

MS medication decisions

More than 15 MS medications, or disease-modifying therapies (DMTs), are available in most countries to treat MS. DMTs come in the form of injectables, infusions, and pills. Some are new, others have been around for more than 20 years. Some have a greater possibility of serious side effects than others. Some DMTs are highly effective at slowing or stopping disease progression; others, not so much. It’s a difficult choice to…Continue Reading

Balancing Lemtrada’s Risk Versus Rewards

Lemtrada risk-benefit

There’s been a lot of risk versus rewards chatter on social media following the recent decision by the European Medicines Agency to initiate a safety review of Lemtrada (alemtuzumab). The EMA has restricted use of the medication within the European Union while that review is underway. That’s worrying some people who are using Lemtrada or who are about to start. For me, it’s really a question of risks versus rewards. The EMA…Continue Reading

How Many Medications are too Many?

Too many medications?

Have you ever heard of the word “polypharmacy”? I saw the word for the first time today. It’s generally defined as taking many medications together. There’s been debate over how many is “many,” but a number generally used is five or more. That describes me. I take six prescription drugs every day. Four of them are directly related to my MS, the fifth is to moderate my cholesterol, and the…Continue Reading