January 2017 - The MS Wire

News, info and tips for living with multiple sclerosis

Have a say in what MS researchers research

Posted on January 24, 2017

Our friends at iConquorMS have a couple of new, quick on-line surveys available for MS patients to answer. I’ll tell you about them in bit but first let me tell you about iConquorMS. (I first wrote about this groups a few weeks ago the column I write for www.multiplesclerosisnewstoday.com). Have you ever wondered how your MS experience compares with others? Your ability to go out and do things? The therapies…Continue Reading

Lemtrada for my MS: Ups and downs

Posted on January 17, 2017

It’s been a month since I last posted here. I’m sorry. I’ve been spending my time riding a roller coaster. It’s the roller coaster of reactions that I was told to expect following my Lemtrada infusions. I managed to avoid most of those reactions for the first month and I thought that I was home free. Ha! What could I have been thinking? Month-two began with a good lab report…Continue Reading

"People newly diagnosed with MS will truly benefit from this book, while those of us who’ve lived with MS for a while will wish we’d had it ourselves!…Neurologists should consider keeping a copy of this book in their waiting room because their patients are going to need it." - Tamara K. Sellman, reviewing for Multiple Sclerosis.net.

The Multiple Sclerosis Toolbox is designed for MS "newbies" but it's great info for everyone. I combine more than 40 years of living with MS with some easy to understand info about diagnosis, treatments, visiting the neuro, relationships, mobility aids, travel and more…a lot of what you get in this blog. A paperback and an e-book are available on Amazon.