News, info and tips for living with multiple sclerosis
I’m back in my happy place. My wife, Laura, and I, along with our Yorkie-poo and our Maine Coon cat, have made it back to our Florida home after 16 hours and about 1,000 miles of driving over two days. There were no traffic jams, we had a comfortable motel bed, my multiple sclerosis bladder problems were pretty much under control, and Laura and I didn’t kill each other. So…Continue Reading
“I’m so tiredThe hammer’s coming down againI’m hardwiredAll the signals cross and double backBroken insideThere’s no fixing anythingHow do i explainI’m fighting every day to do the simple things?” The lyrics to “Hammer,” written by Susie Ulrey of the band Pohgoh, probably ring true for most everyone with multiple sclerosis. Ulrey’s story is similar to many of ours. Double-vision three days before her wedding in 2000. A visit to a…Continue Reading
My mobility scooter quit on me the other day. I can walk 100 feet or so using a pair of canes, but my wheels are usually my legs. So when I turned the key and discovered those “legs” were powerless, I was stuck. This breakdown couldn’t have happened at a worse time. My wife, Laura, had been prepping for a medical procedure, the one where the prep is worse than…Continue Reading
You’d think that people with multiple sclerosis or another disability would have easy access to healthcare services. That’s not always so. A small study in the journal Health Affairs that I wrote about last year said many physicians “expressed explicit bias toward people with disabilities and described strategies for discharging them from their practices.” Now, at the urging of people with disabilities and others, the U.S. National Institutes of Health has…Continue Reading
My wife and I got the latest COVID-19 vaccine the other day, the first of three vaccines we’ll be getting this fall. The others are the seasonal flu vaccine and the respiratory syncytial virus (RSV) vaccine. This was my sixth COVID-19 vaccination, and I’ve received a flu shot every year for decades. They’ve never been a problem for my multiple sclerosis. The RSV vaccine has only recently been approved by…Continue Reading
A question that’s been bothering me lately is this: It seems that more than a few neurologists have a less than optimal understanding of multiple sclerosis. Why is that? In my four decades of living with MS, and during the several years I’ve written about my illness, I’ve regularly heard complaints from people with MS that the neurologist they’re seeing just doesn’t seem to have the right stuff. A Reddit…Continue Reading
Lightning struck at 3 a.m. the other night. The alarm system in my apartment blared — beeep, beeep, beeep — for hours. The dog was barking, the cat was zooming, and I wasn’t sleeping. My stress meter was off the scale. We know that stress can trigger MS symptoms, yet it rarely, if ever, has directly triggered mine. I spent over 40 years in the news media covering breaking news.…Continue Reading
Mice exaggerate and monkeys lie, some researchers jokingly say. (Or is it the other way around?) Testing on rodents and animals is a typical early step in creating medications, and several multiple sclerosis news sites publish articles about these studies. It’s interesting to read what researchers are studying and the experimental MS treatments they hope will work, especially when it comes to the holy grail of MS treatments which, in…Continue Reading
The late August approval of Tyruko (natalizumab-sztn) by the U.S. Food and Drug Administration is big news in the multiple sclerosis world. Tyruko is a biosimilar for Tysabri (natalizumab), and it’s the first biosimilar to gain FDA approval as an MS disease-modifying therapy (DMT). “Tyruko has the potential to extend the reach of natalizumab treatment for [MS] patients, increase healthcare savings and fuel innovation through competition in the market,” Keren…Continue Reading
My wife, Laura, thought it would be fun to take our grandkids, ages 7 and 9, to spend a few hours exploring a giant cave. I wasn’t so sure. Ten minutes into the excursion, I was wondering which one of the adults would be hauled out in an ambulance. Luray Caverns in Virginia bills itself as the largest caverns in the eastern United States. The pictures of stalactites and stalagmites…Continue Reading