News, info and tips for living with multiple sclerosis

It Shouldn’t be This Hard to Get Our MS Medications

I got a phone call from my MS One to One nurse, Lynn, a few days ago. One to One is the patient support service provided by Sanofi Genzyme for patients on the biotech company’s MS disease-modifying therapies (DMTs) Lemtrada (alemtuzumab) and Aubagio (teriflunomide). Lynn called to ensure that all of the paperwork was up-to-date and ready for my second round of Lemtrada infusions, which is scheduled to begin the…Continue Reading

MS Can Be a Kids’ Disease, too – Part 2

After I wrote about pediatric MS earlier last week, a reader commented: “I think it would behoove your editorship to follow up to address to audiences…symptoms that typify the early-age demographic.” That’s a good point. So, I drilled deeper into how MS is handled in people younger than 18 years old and found some very interesting information. Pediatric MS diagnosis To begin with, neurologists have a difficult time diagnosing MS…Continue Reading

MS Can be a Kids’ Disease, Too – Part 1

The age at which a person is diagnosed with MS is usually between 20 and 50, according to the National Multiple Sclerosis Society. But it can be diagnosed in people much younger. In fact, of the estimated 400,000people with MS in the United States, 8,000-10,000 are under 18 years old. We older folks have some pretty good support systems to which we can turn to learn about our disease and…Continue Reading

We’re Moving

The MS Wire has grown over the past year and I’m really glad that so many people have found some useful information here. Now, I’m getting ready to take a leap to a new web host that will give me more flexibility over how The MS Wire looks and is used. The change is supposed to be seamless. Fingers crossed. However, if you have any trouble accessing the blog, or if…Continue Reading

Looking for Healthcare Answers on the Internet Can Drive You Nuts

I know, I know. I write about health issues on the internet, so I shouldn’t be discouraging people from looking for answers here. But, searching the internet to match symptoms with a diagnosis can be a real anxiety booster. Emily Sohn makes a solid case for that in a recent article in The Washington Post: “I might have jaw pain, dizziness or a stomach flu that makes me vomit. Before long,…Continue Reading